I’ve been trying to figure out what it all means. I mean my life these days. What does it mean to be ill, to be mostly fatigued, to be compelled to rest most of the hours of my days? I wasn’t sure what photo could go with this question, and then I happened to see this photo of Billie from five years ago, her body hidden under a sheet on the bed, just her little paws sticking out. Somehow that fits. These days I am mostly hidden, lying down somewhere, sometimes under a sheet, and just a tiny part of me emerging into the world now and then.

I used to admire the elders who were out on the picket lines into their eighties and nineties. It makes me sad, but I don’t think that can be me. I still care about the things I used to care about. I hunger for justice, for human rights, for kindness, for peace. I still rage against cruelty, oppression, violence, and genocide. I scroll on Facebook and try to bear witness to all that is happening out there. I share posts that document the atrocities, in the hope that bearing witness is better than silence. I share posts that document the resistance, in order to foster hope in the face of so much despair. But is that diminished activism what my life now is meant to be about? Is it what it means?

Spoon theory is a method of managing energy for many people with disabilities and/or chronic illness–if we only have so many spoonfuls of energy, we have to ration our activities to match the spoons we have. Lately I am always running out of spoons before I can finish the tasks of daily living. I am lucky if I can keep up with the dishes in the kitchen sink, keep up with cleaning out the litter box for the cats, keep up with watering the vegetables I was so bold to plant. Are these tasks of daily living what my life means now? Do I need to cultivate that Zen approach to being fully present in each moment, however mundane?

Meanwhile, I spend many hours lying on the couch watching tv shows on Roku. Sometimes I have to manage my energy for that too. I can’t handle too much drama. British mysteries are about right, especially if I have seen them before and they are well done. Nature shows are usually okay, unless there is too much about how we are destroying it. Sometimes I nap during the shows. Lately, I’ve been watching “Would I lie to you?” on Britbox for laughs. It all feels rather pathetic actually, but this is the unvarnished truth.

I don’t have the answers to my questions. I don’t know what it all means. But I feel like I have to wrestle with this reality I am living in, wrestle with the meaning, because that is also still who I am, a wrestler-with-meaning. I can look out on the world, but I must also look into this intimate space under the covers. I believe that each human being has inherent dignity, each life has ultimate value. I believe that we are all connected. So how do I find the ultimate value in this life of mine, right now, not based on what I have done or who I have been, but right now. Still able to write sometimes, but about to lie down for the rest of the day.