Tag Archives: Fatigue

Living lying down

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mussed up light blue sheet with two cat paws peeking out, black and white fur

I’ve been trying to figure out what it all means. I mean my life these days. What does it mean to be ill, to be mostly fatigued, to be compelled to rest most of the hours of my days? I wasn’t sure what photo could go with this question, and then I happened to see this photo of Billie from five years ago, her body hidden under a sheet on the bed, just her little paws sticking out. Somehow that fits. These days I am mostly hidden, lying down somewhere, sometimes under a sheet, and just a tiny part of me emerging into the world now and then.

I used to admire the elders who were out on the picket lines into their eighties and nineties. It makes me sad, but I don’t think that can be me. I still care about the things I used to care about. I hunger for justice, for human rights, for kindness, for peace. I still rage against cruelty, oppression, violence, and genocide. I scroll on Facebook and try to bear witness to all that is happening out there. I share posts that document the atrocities, in the hope that bearing witness is better than silence. I share posts that document the resistance, in order to foster hope in the face of so much despair. But is that diminished activism what my life now is meant to be about? Is it what it means?

Spoon theory is a method of managing energy for many people with disabilities and/or chronic illness–if we only have so many spoonfuls of energy, we have to ration our activities to match the spoons we have. Lately I am always running out of spoons before I can finish the tasks of daily living. I am lucky if I can keep up with the dishes in the kitchen sink, keep up with cleaning out the litter box for the cats, keep up with watering the vegetables I was so bold to plant. Are these tasks of daily living what my life means now? Do I need to cultivate that Zen approach to being fully present in each moment, however mundane?

Meanwhile, I spend many hours lying on the couch watching tv shows on Roku. Sometimes I have to manage my energy for that too. I can’t handle too much drama. British mysteries are about right, especially if I have seen them before and they are well done. Nature shows are usually okay, unless there is too much about how we are destroying it. Sometimes I nap during the shows. Lately, I’ve been watching “Would I lie to you?” on Britbox for laughs. It all feels rather pathetic actually, but this is the unvarnished truth.

I don’t have the answers to my questions. I don’t know what it all means. But I feel like I have to wrestle with this reality I am living in, wrestle with the meaning, because that is also still who I am, a wrestler-with-meaning. I can look out on the world, but I must also look into this intimate space under the covers. I believe that each human being has inherent dignity, each life has ultimate value. I believe that we are all connected. So how do I find the ultimate value in this life of mine, right now, not based on what I have done or who I have been, but right now. Still able to write sometimes, but about to lie down for the rest of the day.

Sacred Fire

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Fire in the wood stove during the April storm.

In the midst of a 55-hour power outage, before I knew how long it would actually be, I was sitting in front of the wood stove which had kept us warm for the last couple days. I was thinking about how fire is one of the sacred elements, and yet, I hadn’t been close to a fire recently except during our prior power outage and this one. (Yes, we have now had two power outages in the last two weeks! The first lasted 40 hours.) These power outages are exhausting for us, with our chronic fatigue anyway. But we are so lucky to have the wood stove which heats our house well, and on which we can even cook food, with our tiny cast iron pan or hot water kettle.

Tending the stove is a constant process, kindling a fire in the morning, adding wood, adjusting the flue, adding another log each hour or so. We were running out of wood, except for some poorly seasoned crabapple wood from when our tree fell during a storm last year. But our neighbor kindly said we could have some of his. I am grateful for our neighbors. That was a gift from this storm. The April nor’easter covered all the trees and branches with heavy wet snow that apparently caused over 300,000 outages across Maine, which is why it took so long for power to be restored. Still, it was beautiful outside.

We were without electricity, television, internet, all the usual ways we connect with the world. My phone has limited data (all used up) so I couldn’t use it to connect except for texts and phone calls. We have an old landline phone that we pull out to use because it doesn’t need electricity like our regular landline phone. I even had a great conversation with an old friend on that landline phone. But I realized how much I rely on the internet for connecting with people, for seeing news, for entertainment. Being without power was tiring, just to keep ourselves warm and fed, but being without the internet was so boring.

As I was sitting in front of the fire, on the third morning, I tried to be present to the day, to stop wishing for the power to come back, to accept the day on its own terms. It was then that I thought about fire, about the fires I had sat around, and even danced around in prior times. I thought about the rituals we had done in our own back yard around our own fire circle. Neglected fire circle now. We didn’t light it all last summer. The weeds have grown up around it. It takes some energy to light and tend a fire. I know I haven’t had much energy during the past years. But now I was, by necessity, tending a fire, and by gratitude and intention, remembering that fire is sacred, is beautiful.

When I consider it, it seems like electricity has taken the place of fire in my everyday life. I imagine that electricity might also be considered sacred, although it is more invisible. It heats our home, cooks our food, keeps our food preserved, washes our clothing, heats our water. It also enables these far away connections for which I have much gratitude. It brings stories and news and laughter. I was relieved and happy when the electricity came back on.

But I am also grateful for the quiet days of the storm that brought me back to appreciating sacred fire.

Magic in the midst of illness

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Woke up to a misty morning on this new moon day, and started reading my journal from the last new moon until today. It is a ceremony I honor each new moon, and it is a way for my life to teach me.

I was struck by some passages from the time of Halloween/Samhain, that special time of connections to the ancestors. Because of chronic illness and its deep fatigue, I haven’t felt very spiritually focused lately, not much energy for deep ritual. Plus in COVID times, we don’t have our seasonal gatherings either. But it seems like the ancestors and spirits are reaching out to me nonetheless.

I did manage to cook salmon and potatoes for dinner on Samhain to honor some of Margy’s and my various ancestors. I listened to Quebecois music while doing dishes, and drank East Frisian tea. During the night of the full moon/blue moon I suddenly woke at 4 a.m. and saw the moon shining brightly outside my window. The next day, I saw a cardinal–my healing messenger bird–at the bird-feeder–the only time I’ve seen one there all this season. I was watching TV a couple days later and stumbled upon the movie Coco, which (despite its flaws) got me into the mood of Dia de los Muertos.

Marigolds growing self-seeded in our garden strip near the road.

I was looking for things to watch on our Roku and stumbled upon a series on Canadian Rivers. The best episode was on the Moisie River, or Mishtashipu in the Innu language. I had first learned about this river from Innu people who were fighting to protect it from a hydrodam planned by Hydroquebec. They won that fight, partly because there were also rich white people trying to protect their own salmon fishing. It was beautiful to see the river, and to listen to the Innu people who call it home. (And by the way, the word-segment “ship” in Mishtashipu is a cognate to “sip” in Passamaquoddy, which means river. I feel happy to know that.)

All these little threads meandering unexpected through my days, pulled from me this prayer: “Ancestors, are you reaching out to me from the other side of the veil? Even though I have so little spiritual concentration or focus right now? I open my heart to your presence.” I remembered magical moments of other times when I felt the presence of spirit close by. When my Innu ancient-grandmother, Nukum, first appeared, holding a bowl full of the universe. When I was able, despite all odds, to find the grave of my great-grandmother Claudia in Ottawa. When I was sitting right next to my dad as he took his final breath on this earth.

At the tiny headstone of my great-grandmother Claudia.

During those Samhain days, I was also working on a testimony about my family’s role in colonization. I was feeling the weight of the ancestors–the migrations, the wars, so much. I was feeling overwhelmed by that weight, I was feeling that I could not carry that weight, or imagine ways to find healing for this aspect of my heritage. I feel weary even from the weight of my many living relatives who seem trapped in a cult of lies, there is much estrangement between us. And so once again I reach back to spirit kin.

Finally, I hear: “You don’t have to carry the weight. Let go. Remember trust. I am here even when you cannot hear me, in this dark night of the mind and body. You are already in my hands. It was never a question of guilt or innocence. It was always about love. It is okay to trust my love. Breathe in love.”

And so, today, day of the new moon–this new moon which is also considered part of the time of closeness to the ancestors and spirits–I let myself hear those words again. There is room for magic to intervene, even in the midst of illness and fatigue, even when I cannot dance or sing or build a fire. And I am filled with gratitude.

Breathe Beauty

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This spring, I go from “hard work in the garden” days, to “collapse on the couch” days. With so little sun and so much rain, I feel an urgency on those good days to do as much as possible.  Monday, for example, I was able to inoculate the orchard with Wine Cap mushroom spawn.  That involved shoveling and hauling lots of wood chips from the pile, via a wheelbarrow, over to the trees, laying layers of wood chips in patches near each of the four trees, then spreading the spawn, then more wood chips on top.  (This is on top of old wood chips that are already around the trees.) I also put some compost in patches that I had missed last week.  I also planted chamomile and sunchokes that I had received in trade at the Plant Swap on Saturday.

Then, after, while I am taking a hot Epson salt bath for my aching muscles, I imagine that I will blog about it the next day–but I just haven’t have the energy for much more than Netflix for two days after any garden work days.  So I haven’t blogged about the Fedco tree sale, or about repurposing the garden bed behind the garage for three new blueberry plants, or about spreading seaweed mulch near the trees, or adding compost, or planting kale and more peas.  I haven’t blogged about any of it.

Meanwhile, between the work and the collapse, it is easy to miss the ephemeral beauty of it all.  The other day, I noticed I was missing something. I stopped to sit on the deck, and then walked around the yard, not working. I just looked at bushes and flowers and ferns, paying attention to what was there, appreciating the miracle of plants and their growth.

Violets

These violets came up on their own in a crack in the pavement near the bulkhead.

Fiddleheads coming back!

I thought the fiddlehead fern I planted last year had died, but here they are coming up again near the big old pine tree.

Golden Seal coming up

And here is the golden seal that I planted last year, also coming back after seeming death!

I finally sat down again on the deck, and after I had been there awhile, the hummingbirds boldly flew in to drink from our feeders.

It is hard for me to have so little energy this spring.  I wish I could do much more in the garden, and not be so exhausted every time afterwards.  I guess this is my new reality, this balancing act. But I am reminding myself to appreciate the beauty around me, to notice the color purple on the patio (as Alice Walker might say), to be grateful, and quiet enough for the birds to fly around taking no notice of my presence. To breathe slowly enough for shadows of joy to sneak in.

Hummer shadow